Monday, October 19, 2009

"Tears in Heaven"

Today was my MD Anderson appointment. I didn't expect a miracle, but I had to at least check out my options. First of all...MD Anderson is the best hospital I have ever been to! It's almost IMPOSSIBLE to get lost (and I can usually manage to get lost) and EVERYONE there is so incredibly nice! I loved it! My Dr. was fantastic! He met briefly with me to do an exam and then brought us to the conference room (me, Chase and my mom). He had reviewed my slides and test and whatever and it seems that my most recent biopsy did in fact read Endometrial Cancer, Stage 1, Grade 2! No grade 1 anymore. The megace I was on for 3 months had no affect on the cancer which actually progressed a little bit. I know I had already been told that, but I needed to hear it from someone else.

There is a clinical study being done on women with pre-cancerous and/or Stage 1, Grade 1 cancer where they insert an IUD and test the results - which have all been pretty good (regressing). I no longer have Grade 1. That puts me in a very unfortunate position. At this time, there is no "pill" type of treatment for anything beyond Grade 1. Let me back up real quick and give a little lesson in staging and grading, for those who don't know!

Stage I - confined to the uterine lining
Stage II - moves to the cervix
Stage III - vaginal, cervical and uterine
Stage IV - moves outside the uterus into other organs ie. liver, lungs, etc.

Within any of these stages, the cells will have a grade...

Grade 1 - normal shaped cells compacting together
Grade 2 - the cells are compacted and losing their shape
Grade 3 - the cells have no rhyme or reason; no shape and a bit of a mess

Ok...so I have Stage 1 (which is good), Grade 2 (not so good)! Like I said, they have no "pill" treatment for anything after Grade 1, therefore the only treatment for me is a hysterectomy. I know that's what my first doctor wanted to do, but he didn't tell me WHY!??!! You can't just take out my baby maker and not tell me WHY!!! Now I understand...it SUCKS....but I understand. It's to the point where I need to look out for my well being and my survival. My Dr. was so sympathetic and really understanding. He still seemed a bit thrown by my age (being about 20 years younger than the average End. Cancer patient) and health (pretty darn healthy), but said this is really the only option before it progresses too far.

So I will go home and think it all over. He didn't seem to be in a huge rush, but of course, I need to figure something out soon. I will definitely have my surgery at MD Anderson - I loved that place (as much as you can love a cancer hospital...LOL)!!!

I firmly believe God speaks to us through the obstacles and blessings we encounter in our lives. This is my big obstacle. I'm not supposed to have my own baby - maybe I'm supposed to save the life of a baby who needs loving parents. If anyone has any adoption information or knows of someone for us to talk to, I'd appreciate any information!

Thank you for your prayers. Even though it was not the answer I wanted, I know God listens and he has a fabulous plan for us! After I have a little "feel sorry for myself" time, I'll start preparing myself for our next adventure! I'm so lucky to have my supportive and loving family and my wonderful husband! I love all of you! This story is not over - I'll definitely keep posting as more information comes up! Good night!!!

2 comments:

  1. Hi

    I just found your blog and wanted to offer some support.

    I was diagnosed a few months after you w endo cancer in a pre-IVF workup and in the end am having a simple hysterectomy (keeping ovaries) and pursuing gestational surrogacy as the way to have a family. It's been a rocky few months for me too, and a lot of back and forth with second and third opinions, with both the gyn oncs and also the fertility specialists.

    We did an IVF retrieval (all frozen) before the surgery (which is in 2 weeks).

    I'm happy to discuss at any time because there aren't too many of us in this boat.

    Hang in there - the MD Anderson appointment will probably take a little time to process.

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  2. I'm hoping I can keep my ovaries - but more for hormonal issues than for surrogacy. our first option would definitely be adoption!

    It's a small world of us out there! I'm always glad to talk to other ladies dealing with this!

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